Follow this link to view: OxFSN ANNUAL REPORT and ACCOUNTS 2020-2021
The CBF and the Tizard Centre are working in partnership, supported by an advisory group, to seek the views and perspectives of children and adults with severe or profound and multiple learning disabilities.
Everyone has the right to have a say about their own life and about wider issues that impact on them. This includes children, young people and adults with severe and profound and multiple learning disabilities. In reality, we know that these perspectives are seldom heard. This can be because people think it is too difficult, but this is not true, it just requires more skilled, creative and personalised approaches.
The CBF and the Tizard Centre have been developing ways to improve how we seek the views of people with severe and profound learning disabilities. In recognition of the need to get better at seeking the views of children and adults with learning disabilities and with more complex communication challenges, NHS England has funded the Seldom Heard project.
We are pleased to announce the launch of the Seldom Heard webpage today, which contains lots more information about the project and related work, including the first in our series of communication blogs.
Check out the brand new Seldom Heard Webpage here: https://bit.ly/3fcsRzo
How using digital tools and solutions affects personalised care for people with learning disabilities
OxFSN joined forces with Learning Disability England and Brighton and Hove Speak Up to help NHS England understand how using digital solutions (eg online meetings and appointments with medical professionals) will affect the care people with learning disabilities get. The Personalised Care Group at NHS England wanted to know how digital tools and solutions for personalised care can be inclusive and meet the accessibility requirements of people with learning disabilities.
At OxFSN we know as family carers that our family members whether children or adults need support – usually ours as parents – to get medical help. Any changes in how that happened will affect our lives as family carers – for better or worse.
Three reports are available here:
ANNUAL GENERAL MEETING
The Annual General Meeting of the Oxfordshire Family Support Network
(OxFSN) will be held on:
Thursday 17th September
10.30 am – 11.30 am
Online via Zoom
Please RSVP to Kathy.firstname.lastname@example.org by 3.00pm, Wednesday 16th September if you would like to attend.
As the meeting will be held on line, a link to join via zoom will be sent prior to the meeting.
Note: A Member who is absent from a General Meeting may appoint any person to act as their proxy. Please email email@example.com for the proxy form if you require it.
OxFSN are running their second online zoom coffee and chat session. This will take place on the 1st July from 11.15 onwards and is for any family carers who would like to drop in for a chat. There is no agenda, it’s just an informal get together with some of the OxFSN team and other family carers. We had a lot of fun last time and hope to repeat the process. You can sign in through Eventbrite here:
Upcoming zoom online events that are being hosted jointly by OxPCF and OxFSN which will be relevant to those families who family member is currently attending school or college.
The first session is for those whose son or daughter has an EHCP and will take place on the 30th June.
The second session is for those whose family member needs SEND support but does not have an EHCP. This will take place on the 16th July.
At both events will be key professionals from the SEND teams who will be answering questions.
Email: Kathy.Liddell@oxfsn.org.uk to send in questions or request booking details for all online sessions.