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Digitising Care: Personalised solutions for people with learning disabilities

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How using digital tools and solutions affects personalised care for people with learning disabilities

OxFSN joined forces with Learning Disability England and Brighton and Hove Speak Up to help NHS England understand how using digital solutions (eg online meetings and appointments with medical professionals) will affect the care people with learning disabilities get. The Personalised Care Group at NHS England wanted to know how digital tools and solutions for personalised care can be inclusive and meet the accessibility requirements of people with learning disabilities.

At OxFSN we know as family carers that our family members whether children or adults need support – usually ours as parents – to get medical help.  Any changes in how that happened will affect our lives as family carers – for better or worse.

Three reports are available here:

  1. OxFSN – with family carers views
  2. Brighton and Hove Speak Up – with the views of people with learning disabilities
  3. Learning Disability England’s final report which included everyone’s views and was presented to the Personalised Care Group

Healthwatch Survey – Paying for social care

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What is this about?
In 2018, Oxfordshire County Council did a review of its policy on what people pay towards their social care. These payments (called “contributions”) help to pay for social care services to help you in your daily life. After the review, your weekly payment towards the cost of these services may or may not have changed.

We would like to hear from you about your experiences of this process and how any changes to your weekly payment have affected you and those who support you.

Who we are and what are we asking for
Healthwatch Oxfordshire is an independent charity and is not part of the Council. We are here to help make sure that the voices of people who use support services are heard. We will use the information you provide us to tell the County Council what you think and to influence how it reviews policies in the future.

To participate in the Healthwatch Oxfordshire: Paying for your social care survey, follow the link to https://www.smartsurvey.co.uk/s/SNKQS/

Better Together 2019 Event Report

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OxFSN’s second Better Together Event was held on the 7th November 2019 at Didcot Civic Hall.

It was attended by 52 Professionals from Health, Social Care, Education and the voluntary sector along with 42 family carers of children or adults with learning disabilities and/or autism. 3 adults with learning disabilities and their supporters also attended.

The event followed the format of a ‘World Café’. This year there were eight tables with one topic on each table. This was as a result of feedback from people attending the previous year’s event who felt they needed more time to discuss fewer topics.

Follow the link or click on the image to read the full report.

Better Together Event Report November 2019

To read previous Better Together Event Reports follow the link to:

Better Together Events Previous Year(s) Reports

Embolden Project: Evaluation Report August 2019

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In July 2016, Oxfordshire Family Support Network (OxFSN) began a three-year project, Embolden, to support, advocate for and empower older family carers aged 60+ years who care for a family member with a learning disability.

This report is dedicated to the 215 family carers who brought Embolden to life.

Follow the link to read the full report – Embolden Project Evaluation Report August 2019, or, click on the image below:

Better Together Event Reports

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OxFSN’s Better Together event was held on the 8th of November 2018 at the Kassam Stadium in Oxford and attended by 117 people.

53 professionals from Health, Social Care, Education and the voluntary sector attended along with 60 family carers of children or adults with learning disabilities and/or autism and seven people with learning disabilities and their supporters.

Follow the links to read reports:

Better Together Event Report and accompanying Better Together Event ‘You Said : We Did’ Feedback Report

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