This page contains links to other organisations that may provide further help and information to families and carers of relatives with learning disabilities.
Carers Oxfordshire. Carers Oxfordshire is a free service that offers information, advice and support to unpaid adult carers of adults in Oxfordshire. Including guidance for how to complete a Carers’ Assessments.
Challenging Behaviour Foundation (CBF)
The CBF and the Tizard Centre have been developing ways to improve how we seek the views of people with severe and profound learning disabilities. In recognition of the need to get better at seeking the views of children and adults with learning disabilities and with more complex communication challenges, NHS England has funded the Seldom Heard project.
Follow the link to the Seldom Heard Webpage here: https://www.challengingbehaviour.org.uk/driving-change/seldom-heard.html
dosh is part of the Thera Trust that help to support adults with learning disabilities with matters concerning financial advocacy. Dosh provides financial advocacy, appointee-ship, account management and other money support to adults with a learning disability. They have published a book to help people with learning disabilities, their families, friends and carers to plan for a safe and secure future.
Foundation for People with Learning Disabilities – Foundation for People with Learning Disabilities
Who are we?
We are a group of parents just like you. Our children have a wide range of needs, from mild to severe, including physical disabilities. Some have ‘hidden’ impairments, such as mental health issues, ADHD or dyslexia, while others have behavioural problems, or no firm diagnosis.
What do we do?
As members of the National Network of Parent Carer Forum’s we support the development of parent carer participation, a process in which parents work together with professionals to make improvements to local services.