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OxFSN – Statement: Whorlton Hall Abuse – Panorama exposé

May 30, 2019 By OxFSN Webmaster

Oxfordshire Family Support Network – Statement: Whorlton Hall Abuse – Panorama exposé


The abuse, mistreatment, mental and physical torture of people with learning disabilities and/or Autism at Whorlton Hall has shocked, distressed and angered all of us. How can this still be happening, 8 years on from Winterbourne and following the Government’s public commitment to transform care?


OxFSN believe that it is too easy to simply blame the culture of one institution and specific individuals who perpetrate this abhorrent abuse. While these individuals and those who stood by and did nothing are clearly culpable there is system wide responsibility. Health Care and support Providers, Commissioners, Local Authorities, the CQC and the Government must all be accountable and accept responsibility for allowing this to continue.


Families all around the country have been raising concerns for years about the poor treatment in these places and their voices have been ignored, individually and collectively. It should not have been the responsibility of an undercover reporter to expose this abuse when systems and processes are meant to be there to safeguard people. We urge statutory agencies around the country to listen to, believe and support families who flag up concerns about their loved ones and take immediate action when they hear about poor practice.


We are seriously concerned that CQC could have rated this hospital as ‘Good’ only last year, when the hostile culture of that service was clearly, deeply embedded. The environment alone was oppressive and grim beyond words and this should have raised immediate concerns. We are shocked that there were 100 visits from officials and NHS staff in the year before the abuse was uncovered and a former Inspector’s warnings, as far back as 2015 were ignored.


Anyone visiting these institutions has to know what a good service looks and feels like and so we therefore have to seriously question the quality and skills of the inspectors as well as those undertaking Care and Treatment Reviews and the processes of both. We are also deeply concerned that there is still a reliance on questioning staff and other professionals and believing them, rather than using their eyes and ears to observe people and speak to them and their families, without staff being present. If any service supporting vulnerable people, whether supported living, residential care or hospital doesn’t demonstrate that they work with and involve people’s families it should be a huge ‘red flag’.


There will inevitably be discussions about funding. It’s a fact that despite increasing need, successive Governments have chronically underfunded social care services year on year for decades. This underfunding has led local authorities to focus on fire – fighting crises rather than on prevention and developing local community based solutions. While there is a high financial cost to keeping people in this non/abusive ‘care’, this is clearly not just about money, it is about how and where money is being spent. People end up in these institutions when their current support breaks down, at
a horrendous human cost so, a focus has to be on prevention and local crisis provision. Money could be better spent on ensuring staff are better trained and appropriately paid for the skills needed to support people to prevent crisis intervention being needed. When or if there is a breakdown in support or people need treatment they should be assessed, treated and discharged as soon as possible, close to home, as with any other medical treatment. Until that happens large private hospitals will continue to be paid millions of pounds to, at best, keep people incarcerated and away from their families and at worst tortured and abused and make a profit in the process. We believe that the solutions lie with a total rethink of the so called system, which is clearly not fit for purpose. This needs real blue sky thinking done in total partnership with families and people with learning disabilities and autism, with a funding system that bridges the gap whilst that takes place.


Oxfordshire currently has three people in Assessment and Treatment Units out of county, and OxFSN supports two of their families. We are working hard alongside NHS and Oxfordshire County Council staff to ensure that these families are listened to and supported and their loved ones come back closer to their families. As a family carer led charity OxFSN will continue to work alongside families and our local services to come up with coproduced local solutions, so there is no need to send people to these large private institutions in the future. And, we will continue to press NHS England for the funding needed to do it!


We aim to build on the good foundations that we have started to lay here through the local Transforming Care Programme. There is much to do but we know what needs to happen locally and will continue to strive to ensure it happens. Alongside this we will continue to support all those families whose fear and anxiety levels will have increased to unprecedented levels. Trust has inevitably been damaged by this and families will feel they need to be ever more vigilant to protect their loved ones.


Finally, our thoughts are with the victims and their families who have had to endure this horrific experience. We thank them for sharing their experiences, it must have been desperately difficult to do this. Our thoughts are also with all the people with learning disabilities and autism currently detained in Assessment and Treatment Units around the country and their families. As parents and family carers ourselves we can only begin to imagine how they are all feeling right now and hope they all get the support they need.


Gail Hanrahan
On behalf of Oxfordshire Family Support Network

(PDF File: OxFSN_Statement_Whorlton_Hall_Abuse-Panorama.pdf) 

Filed Under: News Archive, OxFSN Articles, Publications, Resources

Personal Budget Cuts: Call for Evidence

March 13, 2019 By OxFSN Webmaster

We have been contacted by a number of families who have been through reviews of their relative’s support packages and have had their budgets cut.

If this has happened to you please get in touch with OxFSN and tell us what happened. We are trying to compile evidence so we can get a clearer picture of what is happening and if necessary challenge.

If you have recently had a review for your relative or have one booked in the coming months, please could you get in touch with OxFSN so we can advise.

Follow this link to read more: Personal budget cuts – Call for Evidence

Filed Under: News Archive, OxFSN Articles

New voice for parents in Oxfordshire

October 28, 2018 By OxFSN Webmaster

Press Release for Relaunch

26 October 2018 Press release

The new Parent Carer forum for Oxfordshire will be launching on 8 November at the OXFSN ‘Better Together Event’.

The forum has been set up by a group of parents with children who have special education needs (SEN) to work with Oxfordshire County Council and the local NHS to help improve services for children with SEN.

As members of the National Network of Parent Carer Forum’s we will support the development of parent carer participation, a process in which parents work together with professionals to make improvements to local services.

We believe that ‘Every Child Matters’ and that all disabled children and young people in Oxfordshire, should have access to the same opportunities, experiences and information , as any other child.

Julia Stackhouse, Co-Chair of the Oxfordshire parent carer forum said ‘Our Vision is to be a well informed, connected and empowered community of families of children with disabilities or additional needs. We want to build links with as many informal and formal groups both those of parents and professionals so that we can work in partnership with health, education and social care to create quality services that meet the needs of all parent carers and their children/young people’.

Stephanie Harrison, Co-Chair of the Oxfordshire parent carer forum added ‘If anyone has parental responsibility for a child or young person with additional needs or a disability, who is aged between birth and 25 years old and lives in Oxfordshire, please join us and share your experiences so that we can strive to improve services in Oxfordshire’.

The forum and its representative will aim to provide reasoned feedback and support to professionals and ensure young people and their families are listened to. End.

Notes to editors:For further information about the forum, please contact:

Tel: 07394 735666

Email: info@oxpcf.org.uk

Web: www.oxpcf.org.uk

Facebook: https://www.facebook.com/oxpcf/

Twitter: @OxPCForum

Instagram: ox_parentcarers_forum

Address: c/o OXFSN Slade House, Horspath Driftway, HEADINGTON, Oxford OX3 7JH

  • National network of parent carer forums: http://www.nnpcf.org.uk/ The National Network of Parent Carer Forums (NNPCF) is the independent national voice of parent carer forums.
  • In partnership with OXFSN https://www.oxfsn.org.uk/ Oxfordshire Family Support Network (OxFSN) is a not-for-profit organisation run by and for family carers of people with learning disabilities – both children and adults.

Filed Under: News Archive, OxFSN Articles

Joint Statement from the Oxfordshire Transforming Care Partnership Board: Review into the deaths of people with learning disabilities 2017-18

July 2, 2018 By OxFSN Webmaster

Joint Statement from the Oxfordshire Transforming Care Partnership Board:
Oxfordshire review into the deaths of people with learning disabilities 2017-18

Statement from the co-chairs of Oxfordshire’s Transforming Care Partnership Board

“While we have known for many years that people with learning disabilities die earlier than the general population, the Learning Disability Mortality Review report made for grim reading and was deeply upsetting.

As co-chairs of Oxfordshire’s Transforming Care Partnership Board we feel it is important that we make public the work that is being done locally to explain how deaths of people with learning disabilities are investigated in our county. Despite the lower numbers of deaths reviewed, it is clear that there is still much work to be done to address these inequalities. We are however pleased that all deaths are now being reviewed in such detail. We welcome the recommendations contained in this report and the spirit of transparency and openness in which it has been shared.“

Gail Hanrahan (Oxfordshire Family Support Network) and Paul Scarrott (My Life My Choice)

Follow the link to read the full statement: Oxfordshire Transforming Care Partnership Board: Oxfordshire review into the deaths of people with learning disabilities 2017-18

Filed Under: News Archive, OxFSN Articles, Publications, Resources

OxFSN: Response to Proposed Changes to Adult Social Care Contributions

March 30, 2018 By OxFSN Webmaster

Proposed Changes to Adult Social Care Contributions Policy by Oxfordshire County Council and Possible implications for people with a learning disability.

Oxfordshire County Council are proposing to streamline the current policy for assessing financial contributions. The consultation on this is open until April 3rd 2018

OxFSN believes that the council are genuinely seeking to simplify and speed up this process, and we understand why there is a particular focus on older people, as the largest group of people in receipt of social care services. However, we are deeply concerned that this is likely to have a much bigger impact on those with the most complex needs…

Read the response in full here:

OxFSN-Response-to-Proposed-Changes-to-Adult-Social-Care-Contributions-Policy-Implications-for-people-with-Learning-disabilities

Filed Under: News Archive, OxFSN Articles, Resources

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